Officially it's called an adenoma

You can Google Non-Functioning Pituitary Adenoma if you want detailed information but in a nutshell it’s a benign tumor in my pituitary gland.

Three times, it's grown to the point where it affected my optic nerves and pituitary function. Surgery was performed Feb. 2007 again in Feb. 2009 and yet again Nov. 11, 2010 to remove as much of it as possible.

My vision was preserved in each case however I've lost Growth Hormone production and am on thyroid medication to help those levels.

I had radiation after my last surgery. The risk is I could over time loose all pituitary function. The hope is it will slow or stop the persistent tumor's aggressive growth.

12/31/10

Four treatments done, one to go and how am I?

Covered in soft set cement. {lethargic - tired} Nauseous. Head hurts.

Why? Me + radiation.

Me = GH deficient causes fatigue. Thyroid deficient causes same and weeks before medication will help.

A radiation side effect is- can you guess? Yes, fatigue. Triple whammy. Also radiation works over time so the fatigue is supposed to peak weeks after I'm done.

Nausea - A radiation side effect or my poor working pituitary reacting to the stress of undergoing radiation.

Head hurts from being tightly held in place during the treatments.  However some pain in exchange for the certainty I don't move so the radiation is delivered to the proper place is fine. I'm protective of certain things like my optic nerves and brain.

My last treatment is Monday Jan. 3rd, as anxious as I am to have this over, I'm glad to have a few days rest. I cannot imagine how hard it must be to do the five days a week for six weeks schedule, even though the radiation dose is lower, it has to be grueling.

How will thyroid replacement help?

Hoping energy increases, moodiness decreases, no dry skin and to stop feeling cold all the time.

Have I noticed any change?  No. However doctor said it would be four to six weeks before I would. Plus right now the radiation therapy is overshadowing all else.

Will I lose weight?  Wouldn't that be nice. One magic pill, hormone, and I'm like our eldest boy. Reality maybe a couple pounds. Over time, increased energy means more activity so, as always, it's up to me.

Will dose remain the same? Unknown. I'm on lowest dose. Radiation can further lower my function. In February I'll be tested again to see how I'm doing. Adjustments are likely.

12/28/10

First treatment

Had my first dose today.  Took longer to run the set up scans.  Surprised when they said I was done.  I drove most of the way up with Chris sleeping in the passenger seat (he works night shift) then he took over at a rest area about 20 miles out.  He got some rest in the car while I was treated, drove for a while to make sure I was okay, tolerated my treatment all right (and we picked up younger boys from our eldest's place where they'd spent the night) then I drove us the rest of the way.  I felt wiped by the time we reached home.

I worry about my hubby, his sleep so broken up.  He's coming with me each time, worried about how tired I am and may become,  to make certain I'm good to drive.  Wish there was high speed rail from here to OHSU or Star Trek beaming technology :) 

It's going to be a long week.