For a couple years I'd suffered fatigue, mood swings, and menstrual issues. I thought it was stress, it turned out to be a pituitary tumor. Since one of my hormones, prolactin, was elevated they thought it was a prolactinoma.
Medication is successful at shrinking prolactinomas in over 90% of people not, however, with me. Instead the tumor grew aggressively until it was the size of a golf ball within the pituitary gland, which normally is the size of a pea.
My health declined. The gland started to fail and the mass was compressing both optic and facial nerves. On Feb. 13th 2007, I had surgery to remove it.
Pituitary tumors often grow back but my hormone levels remained normal and a series of MRI's reported that the tumor was completely gone. The endocrinologist liked to a miracle given my condition just before surgery. I felt blessed!
But as time passed my health again declined yet my routine hormone levels and MRI continued to be normal. Other tests were run, a biopsy, an ultrasound, a cat scan, and many exams over the following year but every result was normal. I thought I was going crazy.
In December 2008 my MRI revealed the pituitary tumor again. Since my prolactin was still normal it couldn't be a prolactinoma. I was sent to Dr. Johnny Delashaw at OHSU pituitary center for evaluation.
if anyone wants to learn more about pituitary tumors - http://www.ohsupituitary.com/patients/pit.asp
Officially it's called an adenoma
You can Google Non-Functioning Pituitary Adenoma if you want detailed information but in a nutshell it’s a benign tumor in my pituitary gland.
Three times, it's grown to the point where it affected my optic nerves and pituitary function. Surgery was performed Feb. 2007 again in Feb. 2009 and yet again Nov. 11, 2010 to remove as much of it as possible.
My vision was preserved in each case however I've lost Growth Hormone production and am on thyroid medication to help those levels.
I had radiation after my last surgery. The risk is I could over time loose all pituitary function. The hope is it will slow or stop the persistent tumor's aggressive growth.
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