Officially it's called an adenoma

You can Google Non-Functioning Pituitary Adenoma if you want detailed information but in a nutshell it’s a benign tumor in my pituitary gland.

Three times, it's grown to the point where it affected my optic nerves and pituitary function. Surgery was performed Feb. 2007 again in Feb. 2009 and yet again Nov. 11, 2010 to remove as much of it as possible.

My vision was preserved in each case however I've lost Growth Hormone production and am on thyroid medication to help those levels.

I had radiation after my last surgery. The risk is I could over time loose all pituitary function. The hope is it will slow or stop the persistent tumor's aggressive growth.

3/8/09

My hospital stay

My hospital stay was okay. Nurses over all were pretty cool, Doctors however were hit and miss. Since OHSU is a teaching hospital seemed like there were people popping in and out all the time and because of the fluid leak, my blood had to be drawn every four hours. I'm bruised from hands to elbows.

Sunday morning interns didn't arrive to remove the drain and nasal packing until the afternoon nurse demanded action. It took less then ten minutes to remove both and immediately my headache lessened. However since it was too late by that time to be released. Grrr.

Then one of the endocrine doctors popping in to say that I might have to go on medication. Confused because I'd been told medication wouldn't work for my type of tumor I questioned that. The guy stalked over to the computer where they'd been entering my vital signs and brought my record. There was a old report from 2007 that said last time my tumor tissue tested positive for prolactin.

What?

I started to explain what Dr. Delashaw had told us. The man interrupted, "if you’ll let me speak". Startled by his rudeness I fell silent. He made a few remarks on how medication works on prolactinomas then left. A good thing because though I was still on a lot of pain medication and weak from surgery my sweet, even tempered husband was only seconds from tossing him out.

An hour later my endocrinologist came in, said about the same thing and we just stared at her wondering if somehow we'd misunderstood in January. I decided then to ask about one of my hormones that was low 'normal' and she gave me a lecture on how giving medication when someone was ‘normal’ would lead to other problems. This was a complete 180 from her attitude during my pre surgery appointment when she assured us everyone’s normal was different, her focus wouldn't be on numbers but making me feel well. To my utter embarrassment, I started to cry and luckily she left.

Chris comforted me and after a couple moments I regained composure. We set aside our confusion, deliberately focusing on my recovery. We'll demand clarification on my follow up visit when I'm stronger.

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